Living With a Rheumatic Disease
Living with a rheumatic disease:
A child living with a rheumatic disease does not necessarily have to live a limited lifestyle. All the members of the family are affected by a child's diagnosis of rheumatic disease, so there must be an effort to maintain as normal a family activity pattern as possible. With proper management, a rheumatic disease may not have to hinder your child's daily activities over a long period of time.
Exercise and rheumatic diseases:Exercise, when done correctly, can help reduce rheumatic disease symptoms, including:
- preventing joint stiffness.
- keeping muscles strong around the joints.
- improving joint flexibility.
- reducing swelling.
- reducing pain.
- maintaining strong and healthy bone and cartilage tissue.
- improving joint alignment.
- improving overall fitness.
Range-of-motion exercises focus on moving the joints in certain directions to improve flexibility and reduce stiffness.
Strengthening exercises help increase or maintain muscle strength around the joints, keeping joints more stable. Two common strengthening exercises include isometric (tightening muscles without using joints) and isotonic (strengthening muscles by using the joints).
Fitness exercises improve a child's endurance and cardiovascular health, while keeping muscles strong and joints more flexible. Types of fitness exercises appropriate for most children with rheumatic diseases include walking, water exercise, and bicycling.
Always consult your child's physician before beginning any exercise program for your child. A physical therapist and/or an occupational therapist may be involved in your child's care to assist in exercise and therapy.
Diet and weight management and rheumatic diseases:Researchers do not yet fully understand the role of diet and nutrition in rheumatic diseases. Studies are underway to examine the effects of food, weight, and nutrition on the disease. However, the Arthritis Foundation recommends the following dietary guidelines for children with pediatric arthritis and other rheumatic diseases:
Eating a variety of foods from the five different food groups supplies your child's body with the nutrients it needs. Fatigue, pain, and certain medications may make it more difficult for a child with rheumatic disease to eat healthy.
By helping your child maintain a healthy weight, there is reduced strain placed on his/her weight-bearing joints, such as the knees and hips. A nutritionist should be involved in managing your child's nutritional status.
Psychosocial management of rheumatic diseases:Living with chronic pain and fatigue may leave your child feeling depressed and less able to cope with the pain. A cycle of pain, depression, and stress may keep a child from living his/her life to the fullest. Managing pain in a positive manner and taking charge can help break such a cycle. Part of proper pain management involves making sure your child is getting plenty of rest to preserve energy, including:
- adequate sleep
Sleeping eight to 10 hours a night is important in maintaining your child's energy level and restoring his/her spirit. Sleep also allows the joints to rest. Sometimes, an afternoon nap is beneficial in giving the joints a chance to rest.
Being able to relax can help minimize the stress in your child's life and, thus, minimize symptoms. A relaxed body means the muscles are relaxed, relieving some of the pain associated with rheumatic disease. Many different relaxation techniques exist. Consult your child's physician for more information.
The information on this Web page is provided for educational purposes. You understand and agree that this information is not intended to be, and should not be used as, a substitute for medical treatment by a health care professional. You agree that Lucile Salter Packard Children's Hospital is not making a diagnosis of your condition or a recommendation about the course of treatment for your particular circumstances through the use of this Web page. You agree to be solely responsible for your use of this Web page and the information contained on this page. Lucile Salter Packard Children's Hospital, its officers, directors, employees, agents, and information providers shall not be liable for any damages you may suffer or cause through your use of this page even if advised of the possibility of such damages.