Stanford Marfan Center and Related Aortic Disorders

Pediatric Patients Lucile Packard Children's Hospital 725 Welch Road, 1st Floor Palo Alto, CA 94304   Monday-Friday, 8:30 am–4 pm

Phone: (650) 721-2121 Fax: (650) 497-8422

Diagnosis and Treatment for Children with Marfan Syndrome

The Stanford Marfan Center and Related Aortic Disorders is one of the premier centers for the study and treatment of Marfan syndrome in the nation. Our program treats both children and adults, and is one of the largest in the nation. It is part of the Lucile Packard Children's Hospital Children’s Heart Center.
 
Our specialists provide multidisciplinary diagnostic evaluations and therapy for children with Marfan syndrome and other inherited connective tissue diseases. We are able to refer children to a variety of pediatric specialists who are all located at Packard Children’s Hospital. Then, as teenage patients reach adulthood, their care is seamlessly transitioned to our program at Stanford Hospital & Clinics.
 
We are a participant in a multicenter, NIH-funded drug trial that is investigating two drugs, atenolol and losartan, to see which one is better at slowing aortic growth. The trial is also looking for and compares any side effects that can happen when a person takes either drug. We also provide leadership in defining the genetic basis of these diseases, improving patient care and serving as a community resource.
 
Learn more about the Stanford Marfan Center and Related Aortic Disorders.
 

New Patients

New patients, or their parents, can schedule an appointment with our team by contacting the Packard Children’s Hospital Referral Center at (888) ASK-LPCH (275-5724) or referral@lpch.org.
 
Health care providers can refer a patient through the Physician Referral and Consultation Line at (800) 995-LPCH (5724).
 
During the child’s first appointment, we:

• Review the child’s medical and family history
• Perform a physical exam 
• Order any indicated imaging studies and/or genetic testing
• Create a care plan and schedule any necessary appointments with other specialists