Links and Resources
- Surgeries are performed in the Ford Family Surgery Center - a state-of-the-art surgical facility designed specifically for children. Learn more about the Center and how to prepare for your child's surgery.Hospital Amenities
- Family-Centered Care Program
- Where to Stay
- Insurance and Financial Assistance
- Useful Links
- A window-seat bed in hospital rooms for a parent to spend the night
- Unlimited visiting hours for parents, siblings and family members
- Cooking and laundry facilities for parents
- Family support by social services professionals, language interpreters and chaplains
- Recreation therapy and on-site school programs for patients and siblings
- A library with recreational books for children
- Health education resources for parents
- A closed-circuit television system broadcasting special programs for children in the hospital
- Before transplant
- Becoming a partner
- Helping during painful procedures
- Navigating the insurance maze
- After transplant
- Family plan for the transplant
- Family plan for care
For more information, contact the Family-Centered Care Program.
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Ronald McDonald House provides temporary housing within walking distance of LPCH while the child recovers from transplant surgery. Our social worker can assist with other short-term living arrangements to make the family’s stay as comfortable and worry-free as possible. The Stanford Shopping Center is within walking distance of both the Ronald McDonald House and LPCH. Free public transportation is available through Stanford University, making most of the Palo Alto area easily accessible.
More lodging and dining information is available in the For Patients and Visitors area of this Web site.
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For Patients and Visitors area of this Web site.
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- The American Association of Kidney Patients publishes a free four-phase booklet series educating patients and families about end stage renal disease (ESRD).
- The American Kidney Fund provides grants for needy kidney donors and recipients.
- Want a highly visual medical textbook that provides excellent detail on kidney function and disease? Try the Atlas of the Diseases of the Kidney.
- Children’s Organ Transplant Association (COTA) works with families to launch fundraising campaigns to finance the life-long costs of transplants.
- Kidney Patient Guide, a U.K.-based source, provides a great deal of helpful information for kidney patients and their families in plain, easy-to-understand language.
- The National Foundation for Transplants provides patient advocacy and financial support services to transplant candidates.
- The National Kidney Foundation offers e-mail discussion groups for patients, including one for parents of children with kidney disease, and it provides grants for needy patients. The group has a local branch in San Francisco (415-543-3999). The site also provides Internet-based aids for the practice of medicine focused on the kidney (nephrology). Created for physicians and nephrology professionals, this site offers access to in-depth technical information about transplantation as well as other areas of nephrology.
- National Organization for Rare Diseases, Inc. (NORD) represents patients and families with rare diseases, including those that affect the kidney.
- National Transplant Assistance Fund (NTAF) helps families launch and sustain a grass-roots fundraising campaign, alleviating some of the financial concerns associated with transplant.
- The North American Pediatric Renal Transplant Cooperative Study (NAPRTCS) hopes to register and follow greater than 80% of the children receiving renal allografts in North America. They also hope to study the clinical course and natural history of patients with renal dysfunction and to continue following these patients as they move among the end-stage renal disease (ESRD) therapeutic modalities, thus allowing the NAPRTCS to become a complete ESRD patient data system.
- Transplant Recipients International Organization, Inc (TRIO) brings support, awareness, education and advocacy to those involved with organ transplant.
- United Network for Organ Sharing (UNOS) administers the National Organ Procurement and Transplantation Network (OPTN) and the US Scientific Registry under contracts with the U.S. Department of Health and Human Services.