Liver Transplant Resources

Surgeries are performed in the Ford Family Surgery Center - a state-of-the-art surgical facility designed specifically for children. Learn more about the Center and how to prepare for your child's surgery.

• Hospital Amenities
• Family-Centered Care Program
• Where to Stay
• Insurance and Financial Assistance
• Useful Links
• Medical Libraries

   

 

Hospital Amenities

Lucile Packard Children’s Hospital combines the best possible medical care with the utmost attention to the entire family’s needs. Among the features that make this hospital a special place are:

• A window-seat bed in hospital rooms for a parent to spend the night
• Unlimited visiting hours for parents, siblings and family members
• Cooking and laundry facilities for parents
• Family support by social services professionals, language interpreters, and chaplains 
• Recreation therapy and on-site school programs for patients and siblings
• A library with recreational books for children
• Health education resources for parents
• A closed-circuit television system broadcasting special programs for children in the hospital

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Family-Centered Care Program

Families who have already been through transplantation help new families who are facing this long and difficult process. Families attend training and discussion sessions on the following topics:

• Before transplant
• Transplantation
• Becoming a partner
• Helping during painful procedures
• Navigating the insurance maze
• After transplant
• Family plan for the transplant
• Evaluation
• Family plan for care

The Family-Centered Care Program helps families develop strategies for coping with aspects of hospitalization, transplantation, and health care partnerships. Ongoing contact with parent mentors and Family-Centered Care resource specialists teaches families how to implement and modify their strategies.
 
For more information, contact the Family-Centered Care Program.
 
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Where to Stay

For families coming from outside the Bay Area, the Ronald McDonald House provides a temporary living option within walking distance of Packard Children's Hospital while the child recovers from transplant surgery. Our social worker can assist with other temporary living arrangements to make the family’s stay as comfortable and worry-free as possible. A shopping center is within walking distance of both the Ronald McDonald House and Packard Children's. Free public transportation is available through Stanford University, making most of the Palo Alto area easily accessible.
 
More lodging and dining information is available in the For Patients and Visitors area of this Web site.
 
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Insurance and Financial Assistance

For assistance with insurance questions and financial assistance, please contact Rebecca Sullivan at (650) 497-8008. Additional information is also available in the For Patients and Visitors area of this Web site.
 
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Useful Links

You can find additional information about liver transplantation at these Web sites:

• American Association for the Study of Liver Diseases (AASLD)
• American Liver Foundation
• California Transplant Donor Network
• Center for Organ Recovery and Education (CORE)
• Children’s Liver Alliance  (formerly the Biliary Atresia and Liver Transplant Network)
• Children’s Organ Transplant Association (COTA) - Helps arrange funding for transplant expenses
• Coalition on Donation
• Intestinal Transplant Registry
• National Institutes of Health
• National Transplant Assistance Fund
• The Transplant Foundation - Grants for immunosuppressive drug users
• Transplant Recipients International Organization, Inc. (TRIO)
• TransWeb
• United Network for Organ Sharing (UNOS)
• ustransplant.org

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Medical Libraries

• Stanford Health Library
  Stanford Shopping Center
  Palo Alto, CA  94304
  (650) 725-8400

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