Epidermolysis Bullosa (EB) Clinic

Experts in Epidermolysis Bullosa Treatment

Lucile Packard Children’s hospital provides the expert multidisciplinary care necessary to address the complex needs of children with Epidermolysis Bullosa. We offer comprehensive care for Epidermolysis Bullosa in the form of a specialized monthly clinic, held on the third Friday of each month.

The Multidisciplinary Epidermolysis Bullosa Clinic is staffed by a team of doctors and providers expert in the care of this rare genetic skin disorder. Epidermolysis Bullosa is a disease that causes extreme skin fragility, leading to recurrent blister growth. It is a severe condition that requires ongoing, focused treatment. Our experts educate you and your child about Epidermolysis Bullosa, offer support and guidance, and work together with you to develop a comprehensive plan for the care and management of your child’s condition.

If your child is suffering from Epidermolysis Bullosa, please contact our nurse coordinator at (650) 725-9961 to schedule an appointment at the Multidisciplinary Epidermolysis Bullosa Clinic.
 
If you are a physician and would like to refer a patient to our Epidermolysis Bullosa Clinic, please download a consultation request form (PDF) and fax it to (650) 736-0736.
 

Learn More

• Frequently Asked Questions (FAQs) 
• Meet our EB Team 
• What to expect at your clinic visit 
• Research 
• Clinical Trials 
• Meet a Patient – EB patient Garrett Spaulding and his mother were featured on Extraordinary Humans on National Geographic TV in 2010.
• Resources for Patients and Families 
• Resources for Health Care Professionals